They started him on a slew of medicines. He left the hospital on 3ml of phenobarbital and a whole packet of vigabatrin. His vigabatrin had to be shipped from Canada to my house because they do not make vigabatrin at any pharmacy in America. The neurologist explained to me how it is actually illegal in the U.S. I had to join this SHARE program along with his neurologist in order to receive the medicine. The people from the pharmaceutical  company and SHARE program called at least twice a week to check on his progress. I really appreciated them for that. Because I felt like they understood what I was going through. No one can tell you how it feels to watch your baby have seizures without knowing what the outcome will be.